Mitochondrial disease symposium...

My husband and I just returned today from 5 days away from the kids. I know we both really neede it but it was a bit too long. We actually spent 3 days in Phoenix at a mitochondrial disease symposium.. It was a great experience with people that actually understand our situation and live it everday themselves. There were doctors and families who came together to learn more about this disease, I felt at home. It was a truly remarkable and I am so thankful we were able to attend. Mike and I then ventured to Vegas for a couple days, the whole trip brought us closer together. Owen is hanging tough, although the summer is kicking his butt. He has developed alot of stomach problems lately, so he will be scoped in the near future. Scarlett is growing more beautiful with each passing day and her smile gives me strength to move forward. I am blessed, I realized that while I was away. My path may be a little different than others but I own it....